Barb Wilkie's EHN Website
Last updated 2008

EHN Board President Barb Wilkie was very ill from chemically-induced kidney disease for several years. She passed away May 31, 2011. EHN presents this site both as a tribute and as valuable information. Many links and references will be out of date but Barb's research holds up over time. We will be transferring the site page by page, with updated details, to EHN's main site. If you would like to reach an EHN staff person, please contact us directly.


Kendall | David Kibbey | Kidney Disease | Kids | Kilburn | Knight | Kongevang



  • Kaiser Oakland


  • Kaiser Permanente
    Kaiser requests patients to arrive for appointments fragrance-free -- at least to
    many sections of Fabiola Building, Oakland, Calif. -- barb

    • Find Facility Directory, etc.


    • Kaiser Permanente
      Fragrance-free Workplace Policy

      "To help promote a healthier and more enjoyable work place, the management team
      and space committee have put together a department policy regarding the use of fragrant
      products. ..."

      "We recognize that exposure to strong scents and fragrances in the environment can cause
      discomfort, as well as directly impact the health of some individuals. Since we hope to
      support a healthful environment for employees, physicians, and visitors, it is the intent
      of Quality and Operations Support to strive for a fragrance-controlled workplace.
      Therefore, for the comfort and health of all, use of scents and fragrant products by QOS
      employees, other than minimally scented personal care products, is strongly

      "APPLIES TO:
      "All employees ..."

      Well, this is a bit of a crock, based on my personal experiences, including Nov. 2004.
      Believe me, I've tried to track this down and the number of Kaiser people who don't know about it is
      really something. The other response I've gotten time and again, is "OH, we have a fragrance-free
      policy, we're not to wear more than a modicum of scent." Let me assure you, I've assured the
      individuals in the Patient Services section that there is no such thing as a fragrance-free policy
      in which a modicum of scent is allowed. When one chooses to use mainstream industry's
      petrochemical-derived fragrances, one pollutes not only their body, but the bodies of others
      because they pollute the air for all.

      And, in update, I will definitely add my assault by perfume experience in nephrolgy/Pulmonary
      department of the main Oakland Kaiser hospital on July 26, 2005.
      3/2/2006: I've not been back to that killer department since. But, I highly praise my internist and
      my GYN for doing everything in their power to accommodate my needs; to give me access. -- barb


    • Fragrance-Free at Allergy/Dermatology in Oakland, California
      Sign on door --
        "Please use discretion and avoid wearing scented products,
        perfume or smoking right before coming to the Allergy Department.
        Many of our patients are very sensitive to scented products,
        perfumes and smoke. Thank you for your cooperation."
        [Fall 1998, barb]

    • Partners in Health


    • Kaiser settles lawsuit over disabled access
      April 13, 2001, By Josh Richman; Oakland Tribune STAFF WRITER\index\newsarchives\angtr\loc\20010413\793718_s2bs213.txt&searchtext=Kaiseranddisabled&puid=557


  • Concerned Kaiser Permanente Consumers

  • Kaiser Watch


    Melissa Kaplan
    The Carousel Network: CFS/FM/MCS Information and Support for Sonoma County.

    Rebecca Kaplan

    Keep Hope Alive
    Serving the community of people living with health problems such as: HIV, HHV-6,
    AIDS, nutrition, immune system, chronic fatigue

    Julia Kendall

  • The Work of Julia Kendall (1935 - 1997)

    David Kibbey
    We are deeply saddened to inform you that David Kibbey passed away, Aug. 9, 2001.
    This site will give you a chance to sign in on their guest book. Also, if you wish to
    make a donation to the scholarship fund set up in David's memory, please send your
    tax-deductible doanation to :
      NorCal ADPSR/ David Kibbey Fund
      PO Box 9126
      Berkeley, CA 94709-0126
    -- barb


    Kidney Disease (aka Renal Failure)

    Barb's story -- Wilkie Wages War on Kidney Disease -- has moved to its own section. Those
    who wish to follow and learn with me, please click here to go to section kidneybw.htm.

    Following a visit to a nephrolgist inApril 2006, I turned to hubby and stated, Hey, kidney failure
    a win-win for pharmachology, and the medical industry and its docs.

    The only treatment they can suggest is their drugs, which as I've already experienced, will make
    me sick. As I don't want to "do drugs" they want to wash their hands of me. Not look for safer
    means of getting the blood pressure down -- kidney disease causes high blood pressure and
    then they are all convinced that high blood pressure accelerates kidney failure. Not look for safer
    means of postponing the inevitable: dialysis and/or premature death.

    Take drugs, which process through the kidneys, POSSIBLY causing more rapid kidney failure --
    where's the proof that the drugs don't hasten kidney failure? Then go on dialysis and then
    transplant and soak up the big bucks in drugs. What a deal. For the medical doctors and industry.
    For pharmaceuticals.

    If the patient doesn't see eye to eye with the prescribed plan of dealing with kidney failure, tell
    patient you can't help them because you only know what you know. Then, stultify patient.

    So that was April and now it's June 2006 and I still feel asymptomatic for kidney failure, but still
    treat my diet as if I have severe kidney failure . . . And now a friend sends a link to this information:

    Medical Guesswork
    BusinessWeek's cover story, MAY 29, 2006
    "From heart surgery to prostate care, the health industry knows little
    about which common treatments really work
    "...What's required is a revolution called "evidence-based medicine," says Eddy, a
    heart surgeon turned mathematician and health-care economist. ..."
    And, evidence based kidney information is what I try to give via Wilkie Wages War ... -- barb

    And for those into PodCasts:

    By the bye, Kaiser does not cover my holistic treatments, nor do they refer me out.
    Therefore, not one of the tests or treatments done outside of Kaiser is covered by
    Medicare. They would be if I were a "regular" patient. Just think, I worked all those years,
    getting poisoned in an office just so I can spend money now for treatments that other
    folks depend on Medicare to cover. Ain't that a kick?Of course, I'm thankful that my labs
    and routine doctors visits are covered by Kaiser.

    However, the tests I've had done within this past year, the very ones proving that I do
    not have allergies are all out of pocket expenses for me. Medicare didn't cover a
    one. And, to think, for all these years I've stated I DO NOT HAVE ALLERGIES!, I
    have been chemically injured! Well, I'm down a bunch of bucks, but I've got results to
    prove that, son of a gun, I do know my own body!!!!! Well, at least regarding that aspect.

    I have said down through the years and I'll say it again, When the lid blows off the
    flavors and fragrance industry, it will make the tobacco industry look like small potatoes.

    Of course, there are research dollars needed to PROVE what we all know to be fact. Not just from
    our own lives, but from research done by others in Europe and Japan, as well as by some brave
    souls in the USA. But so far, research takes money and the flavors and fragrance industry has
    a very strong lobby . . . and you figure it out.

    So the bottom line is: People exposed to the petrochemically derived flavors and fragrances get sick.
    If in school, and they are students, their education is hampered; if they are teachers or other
    school personnel, their careers are adversely affected, as well as their health. IF they are in the
    healthcare industry, or a law office, or a government agency, . . . well, they can have their
    working lives made miserable for them, and it is not considered discrimination, nor harassment.
    And, if they are newly employed, they can be fired at whim. It becomes a vicious cycle and yet,
    it doesn't have to happen at all. Just keep petrochemically derived fragrances out of all public
    areas. Especially, healthcare facilities and retirement residences. There ARE safer alternatives.

      Blood Pressure and Kidney Disease
      Interestingly, the mainstream medical doctors attribute my renal failure to hypertension, yet,
      aside from my internist and GYN, the Kaiser Oakland system doesn't seem to get it. Get it
      that their highly scented facility -- everything from the restroom air "fresheners" to the
      cleansers they use before visiting a patient, to highly scented staff, patients and visitors -- puts
      ALL patients in harm's way. And that is especially true for the already chemically injured,
      renal failure patient. Me! And millions of others like me. WHY are you trying to kill us off?

      Petrochemical derived fragrances adversely affect the cardiovascular system and in my case, as with
      so many others, that causes a spike in my blood pressure! And they say: Blood pressure
      causes kidney disease. Fragrance chemicals do cause spikes in blood pressure. When will they
      GET IT?!? Or maybe they do, and they are happy about that because they can push more drugs. -- barb


      Blood test bruises?
      I use Traumeel to fade the bruise. I also use it to releive the aches as it is both an
      analgesic and an anti-inflammatory . . . and I've had no adverse reactions to it at all.
      Interestingly, the nephrologist states to save blood vessels. Also interesting is that thus
      far, there is one man and one woman at Kaiser who haven't left me bruised, but blood
      tests elsewhere so far are always free of brusing.

      Calculate your GFR (estimated kidney function)

    • Chronic glomerulonephritis - foamy urine can be a result . . .
      "Chronic glomerulonephritis is the advanced stage of a group of kidney disorders,
      resulting in inflammation and gradual, progressive destruction of the glomeruli
      (internal kidney structures).
      The Cleveland Clinc
    • Foamy urine
      I started with loads of white foam in June 2005. I've learned it came and went w/protein
      consumption . . . then veggie diet. As my protein readings dropped, the foaminess dropped to
      either nonexistant or small amounts, which apparently was caused by sapions.

      I use UriStix to measure protein in urine and then adjust my diet
      accordingly. Interestingly to me -- haven't been able to discuss with any nephrologist -- I have
      found that when I've not had enough protein in my diet, I tend to pee more protein, as if I'm
      stripping my body of that important nutrient. So then, I up the protein consumption a little and
      am back to trace -- sometimes negative -- readings on the
      UriStix-- barb

      by P.M. Hall, MD

      Rapidly progressive glomerulonephritis
      " ... includes any type of glomerulonephritis (inflammation of the glomerulus)
      in which progressive loss of kidney function occurs over weeks to months.



    • Coenzyme Q10
      Yes, I am taking Co-Q10 . . . 100 mg, three times a day. The easily absorbable type. -- barb

      • Coenzyme Q10 Good for People with Kidney Failure
        "Supplementing with coenzyme Q10 (CoQ10) can improve kidney function and reduce
        the need for dialysis in people with severe, chronic kidney (renal) failure, according to a
        study in the Journal of Nutritional and Environmental Medicine (2003;13:13-22). If this
        study is confirmed, CoQ10 therapy will represent a major breakthrough in the
        treatment of a disorder that is both debilitating and a significant drain on our healthcare
        resources. In severe, chronic renal failure, the kidneys lose their capacity to excrete
        waste products of metabolism and other toxins. Consequently, these substances
        accumulate in the body, leading to various problems such as fatigue, loss of appetite,
        anemia, disorders of the nervous system, heart disease, and ultimately death. ..."


      • Co-Q10 Insufficiency and Renal Failure


      • Health Encyclopedia
        "The maximum safe dosages of CoQ10 for young children, pregnant or nursing women,
        or those with severe liver or kidney disease have not been determined. "


      • Kroger Health Guide - Coenzyme Q10


      • What Is CoQ10 and How Can It Benefit You?Ý
        Solanova - The Heart Health Company


    • Coping with Kidney Disease -- A very helpful book!
      By Dr. Mackenzie Walser
      "... The goal of this site is to inform you about an approach to kidney disease that has
      enabled my patients to avoid or forestall dialysis for many years...."


        Thanks to Betty Bridges, RN, I now own a copy of Dr. Walser's book, which I follow. -- barb
        "Coping with Kidney Disease introduces a 12-step treatment program that can help
        people with impaired kidney function avoid or forestall dialysis. It's based on the work of
        Dr. Mackenzie Walser, a 45- year veteran of Johns Hopkins University. Dr. Walser
        has helped hundreds of patients with kidney disease go for years without dialysis.

        I also have a book, again thanks to Betty Bridges, that tells me how to wash my meat in
        an effort to reduce creatinine intake, yet keep the protein. Meat washing works best
        with ground meat or at most, small cubes of meat. Wish I could remember its title,.

    • Detoxification Through the Skin
      by Mark Sircus Ac., OMD
      ÝThe detox experience can be madeÝmuch easier, shorter and more effective.
      Discusses chelation and moves on to ionizing foot baths, detox foot patches, and Far-InfraRed
      saunas, etc., as means of detoxing more safely than through the overtaxed kidneys.
      This is a description of a new treatment for me to start in February 2006. We'll see. -- barb


    • End-stage kidney disease
      "... End-stage kidney disease occurs when the kidneys are no longer able to function at a
      level that is necessary for day to day life. It usually occurs as chronic renal failure
      worsens to the point where kidney function is less than 10% of normal.

      "At this point, the kidney function is so low that without dialysis or kidney transplantation,
      complications are multiple and severe, and death will occur from accumulation of fluids
      and waste products in the body.

      "In the U.S., more than 400,000 people are on long-term dialysis and more than 20,000
      have a functioning transplanted kidney. The most common cause of ESRD in the U.S. is
      diabetes. ESRD almost always follows chronic kidney failure, which may exist for
      10-20 years or more before progressing to become ESRD. ..."


    • End Stage Renal Disease


    • Foods high in Phosphorous
      Included are cereals, grains, beans, meat, poultry, fish, nuts, seeds, dairy and chocolate
      • Food High in Potassium (LIMIT or AVOID with renal failure)


      • Foods high in Potassium
        We all know about bananas, but do we think about tomatoes, potatoes, mellons, soy beans?
      • GFR calculation - kidney function estimation based on creatinine, age, race


      • Glomerular Diseases
        "Many diseases affect kidney function by attacking the glomeruli, the tiny units within
        the kidney where blood is cleaned. Glomerular diseases include many conditions with a
        variety of genetic and environmental causes, but they fall into two major categories:
        • "Glomerulonephritis (gloh-MAIR-yoo-loh-neh-FRY-tis) describes the inflammation of
          the membrane tissue in the kidney that serves as a filter, separating wastes and extra
          fluid from the blood.

        • "Glomerulosclerosis (gloh-MAIR-yoo-loh-skleh-ROH-sis) describes the scarring or
          hardening of the tiny blood vessels within the kidney.
        " Although glomerulonephritis and glomerulosclerosis have different causes, they can
        both lead to end-stage renal disease (ESRD). ..."


      • Glomerular Diseases Fact Book
        " ... Treatments involving steroids or other immunosuppressive drugs appear to help
        some patients by decreasing proteinuria and improving kidney function. But these
        treatments are beneficial only to a minority of those in whom they are tried, and some
        patients experience even poorer kidney function as a result of therapy.
        added.] ACE inhibitors may also be used in FSGS to decrease proteinuria. Treatment
        should focus on controlling blood pressure and blood cholesterol levels, factors that may
        contribute to kidney scarring. ... "
        Now, take a patient who is already living with the effects of chemical injury and I ask you,
        WHY would a nephrologist even suggest steroid treatement . . . especially in a patient who has
        already had an adverse reaction to Prednisone when being treated with it for lung symptoms of
        MCS? Yet, that is exactly the treatment suggested to me. Horrors. -- barb


      • Hair Analysis
        • Doctors' Data
          "Doctor¼s Data, Inc. (DDI) a premier clinical laboratory with over 30 years¼ experience,
          provides specialty testing to healthcare practitioners around the world. Ý A specialist and
          pioneer in essential and toxic elemental testing of multiple human tissues, the
          laboratory offers a wide array of functional testing. Ý DDI¼s tests are utilized in the
          assessment, detection, prevention, and treatment of heavy metal burden, nutritional
          deficiencies, gastrointestinal function, hepatic detoxification, metabolic abnormalities,
          and diseases of environmental origin. "
          Sending in hair samples per doctor's request early February 2006. -- barb


      • Herb of the Season: Stinging Nettle (Urtica dioica)
        By David Winston, AHG
        Yes, I take a tincture of stinging nettle SEEDS, barb
        "... More than 10 years ago, I discovered Nettle Seed could be used as a kidney
        trophorestorative-literally a food for the kidneys. I have used the seed tincture to
        treat over 30 cases of degenerative kidney disease and the results have far exceeded
        my expectations. A recent study published in the Journal of The American Herbalist Guild
        [4(2):22-25] confirms my clinical experience, showing that Nettle Seed increases kidney
        glomerular function and reduces serum creatinine levels. ..."


          I get my stinging nettle seeds tincture from Elk Mountain Herbs. The dry seeds taste fine
          to me, however the tincture made from fresh seeds has a decidely soapy taste. The only way I
          can mask that, and not taste it for hours following ingestion, is to put about an eighth of a cup
          of cranberry juice in a glass, add the two dropersful of tincture, swish around a bit and then
          take down in a gulp, holding my breath, with a fast refil of the juice for another gulp. That
          works for me, I make no guarantees for you. -- barb

      • Hyperbaric Oxygen Therapy
        Not listed as a healer for Acute Renal Failure, nor Chronic Renal Failure, but I'm trying it nonetheless. -- barb
      • Hypertension
      • Ionic Cleansing


          Clean Body Detox FYI only
          (I don't know anything about this brand, but put the link here so you can form an opinion. All
          I know is that I've been having Ionic Foot Bath sessions in February and March 2006 and the
          water turns yellow and started out with strong smell of chlorine, which has faded over time.
          The last few times there's been not only black flecks of heavy metals, but a few red flecks that's
          supposed to indicate blood clot material. Now how this is supposed to work through the soles of
          the feet is a mystery to me. Maybe it's "snake oil" maybe it's real, but I'm really waiting
          eagerly for the March blood test. -- barb)

          Townsend Letter for Doctors and Patients: IonCleanse detoxification
          I can't see this on my old computer, but perhaps you can . . . barb


      • Kidney Disease
        St. Mary's


      • Kidney Disease: When Those Fabulous Filters Are Foiled
        by Ken Flieger
        "... If the kidneys falter or fail, we lose an internal pollution control system without which
        virtually every other bodily process becomes awash in potentially toxic wastes. And
        that's not all. Besides purifying blood, the kidneys synthesize hormones and vitamins
        that control growth and help control blood pressure, regulate the production of red
        blood cells, and maintain the right balance of minerals and chemicals in the body. ..."

        "... As the disease progresses, hypertension becomes persistent and difficult to treat. With
        severe loss of kidney function, patients experience diminished appetite, nausea and
        vomiting, extreme fatigue, difficulty sleeping, itching and dry skin, and muscle cramps ...."


      • Kidney Failure: Choosing a Treatment That's Right for You
        This write-up includes pros and cons of the various dialysis options AND of choosing to not
        undergo dialysis or transplant. Right now, I'm still choosing NO treatment. At least not that way.
        I'm currently trying to alkalize my diet, hoping that will eliminate acid crystals thereby
        improving kidney function. Time will tell. So far, I'm more than a year beyond my "dead"line.-- barb


      • Massage Therapy
      • National Kidney Foundation


          Kidney Disease: Causes
          This is pertinent to my case:
          "The third leading cause of end stage kidney disease in the U.S. is glomerulonephritis,
          a disease that damages the kidneys' filtering units, called the glomeruli. In many cases,
          the cause of this disease is not known, but some cases may be inherited and others may
          be triggered by an infection."
          Why is it that everyone is quick to hide behind the word "Unexplained" or state that the
          cause of a given disease is "not known" and yet never, but NEVER, look at the proliferation of
          petrochemically derived flavors and fragrances? Now one can do one's best to avoid products
          with petrochemically derived flavors -- including avoid using pharmaceuticals -- but one is
          hard put to protect oneself from petrochemically derived fragrances. Those toxins are made to
          volatilize readily and become one with the air we all must breathe. And as our respiratory systems
          are highly efficent devices for drawing those toxins into our bodies, we become users of fragrances
          even if we have our God-given sense not to use such artificial products on our bodies.


        • Kidneys: Master Chemists of the Body


        • Nutrition and Chronic Kidney Disease -- reducing phosphorus, potassium, sodium


          Too much phosphorous is bad as it can leach calcium from your bones. -- barb


        • Potassium and Your CKD Diet -- High and low potassium foods
          Too much or too little potassium is bad and can cause heart attacks or strokes. -- barb


        • Symptoms:
          "nausea, vomiting, hiccups, tiredness, weakness, sleepiness and other disorders."

          Warning Signs of Kidney and Urinary Tract Diseases

            1.High blood pressure

            2.Protein and/or blood in the urine

            3.Creatinine and BUN blood tests outside the normal range*

            4.Glomerular filtration rate (GFR) of less than 90**

            5.More frequent urination, particularly at night; difficult or painful urination

            6.Puffiness around eyes, swelling of hands and feet


      • NETTLE Seed from Elk Mountain Herbs
        This is the nettle seed I am using. Normally, I do not openly recommend products, but this time,
        I'm just letting you know what I am doing. We can watch my creatinine levels together. -- barb


      • Qigong
        I have been taught a few Qigong exercises and it was also strongly suggested I get a tape. -- barb
      • Reflexology
      • San Francisco Preventive Medical Group
        Paul Lynn, M.D., Medical Director
        Joel Lopez, M.D., N.D., Associate Medical Director
        I'm being seen by Dr. Lopez in an effort to safely detox and hopefully spare my kidneys
        further stress. -- barb



      • Saturated Fats and the Kidneys
        By Mary G. Enig, PhD


      • Stem Cells
        Discovery of Bone Marrow Cells developing into Kidney Tissue opens door to new treatments
        Press Release issued by the Imperial Cancer Research Fund, Wednesday 25th July 2001
        "... Professor Malcolm Alison, a research pathologist working at both Imperial Cancer and
        Imperial College School of Medicine, said:
        ' "Our laboratory experiments showed the presence of cells in the kidney that came from
        bone-marrow stem cells, but we then went a step further and proved it can actually
        happen in the human body. This research matches other recent studies showing how
        bone marrow cells may also develop into liver, nerve and muscle cells - not just blood cells.' ..."


      • Steroid treatments for kidney failure
        I've been prescribed Prednisone for MCS symptoms in the early 1990s and I had adverse
        health events, which I'm not inclined to want to repeat. A nephrologist scoffs and mocks! But,
        for those of you who are interested in trying the drug approach, here are some links-- barb

        • Glomerular Diseases Fact Book
          " ... Treatments involving steroids or other immunosuppressive drugs appear to help
          some patients by decreasing proteinuria and improving kidney function. But these
          treatments are beneficial only to a minority of those in whom they are tried, and some
          patients experience even poorer kidney function as a result of therapy.
          added.] ACE inhibitors may also be used in FSGS to decrease proteinuria. Treatment
          should focus on controlling blood pressure and blood cholesterol levels, factors that may
          contribute to kidney scarring. ... "
          Now, take a patient who is already living with the effects of chemical injury and I ask you,
          WHY would a nephrologist even suggest steroid treatement . . . especially in a patient who has
          already had an adverse reaction to Prednisone when being treated with it for lung symptoms of
          MCS? Yet, that is exactly the treatment suggested to me. Horrors. -- barb


        • HIV Nephropathy: To Treat or Not to Treat?
          By William A. Briggs, M.D.


        • Focal Segmental Glomerulosclerosis


      • Study on effect of Cordyceps sinensis and artemisinin in
        preventing recurrence of lupus nephritis


        by Subhuti Dharmananda, Ph.D., Director, Institute for Traditional Medicine, Portland, Oregon


      • Urtica semen [stinging nettle seeds] reduces serum creatinine levels
        By Jonathan Treasure; reprinted from The Journal of the American Herbalists Guild; 2003
        View as HTML:



    Kids -- see Children/Students (

    Kaye Kilburn, MD
    Career Resume

    Dan Knight

    Helle Kongevang - Homepage
    (In English and Dansk)

    Dr. C. Everett Koop, former US Surgeon General
    While Dr. Koop knew about tobacco, he has a lot to learn about fragrances . . . And what is sorely disapointing, he posts Barretts rants. -- barb

    KQED-TV Program Listings

    Shelley Kramer
    Healthy Communications


    To top of page.

    Ecology House
    Please respect the residents and their requests by following the instructions provided on
    EHN's Ecology House page or Ecology House's page
    EHN --

    EcHouse --

    EHN's homepage ehnindex.htm

    EHN's FDA Citizens' Petition (YOUR petition), docket number 99P-1340,

      Petition 99P-1340 requests that the FDA do the work it is supposed to do to protect public
      health. The US FDA does not even require its alert on all fragrances released to market
      without substantiation of safety. Analyses show that fragrance you buy, described as
      various flower essences, are really petrochemically derived. Those fragrances should
      carry the FDA's required: 'WARNING: The safety of this product has not been determined.'


    Fabric Softeners = Health Risks From Dryer Exhaust and Treated Fabrics
    By Julia Kendall

    Government WWW LINKS

    Making Sense of Scents
    By Julia Kendall

    The New Reactor

    Twenty Most Common Chemicals Found in Thirty-One Fragrance Products
    By Julia Kendall

    In progress -- it may be slow but it is steady. Please bear with me. Thank you. -- barb

    ehnlinx.htm -- rev.9/13/97:bw EHN's General Links, page K -- link out to Julia Kendall's Twenty Most Common Chemicals ..., Fabric Softeners ..., Making Sense of Scents, Kaiser Oakland asks patients to leave their scents at home